Thursday, February 6, 2025

Monday, February 10, 2025

Good morning.

Today was a difficult writing day for me. I wrote, deleted, rewrote, deleted, and finally ended with the following:

Another day, another 1,440 minutes. And this morning, I wake up still sick. The doctor confirmed it’s just a viral infection—nothing serious, nothing that can be fixed with more time and a handful of over-the-counter meds. See photo to follow.

This week, I crossed a milestone: 250,000 minutes since my ALS diagnosis on August 13. A quarter of a million minutes. And I’d wager I’ve thought about this disease just as many times. It’s always there, lingering, pressing itself into every moment, the active ones, the quiet ones, and each nighttime (I get tangled in the sheets and struggle to get out).

I could list everything I’ve lost, the things my body can no longer do. That list grows longer by the week. But instead, I try—really try—to focus on what I can still do. It’s a strange paradox, knowing exactly where this road leads yet choosing to walk it one step at a time. I can’t seem to make long-term plans, so I live in the short-term, just trying to get through this week before I dare think about the next.

I don’t want pity. That’s not why I share this. What I want is to hold onto my independence for as long as I can, to learn how to accept—truly accept—what I know has very little chance to be changed.

So today, I’ll take what I’ve been given. All 1,440 minutes of it. And when tomorrow comes, I’ll do it all over again.

Sorry for dropping this on you, it seems rather heavy when I reread it, but the 250,000 minute thing was really impactful when I saw it.

Everyone, have a great day. It’s a beautiful world out there filled with so many good people.

Love you guys!❤️

(Just a few things to treat my cold symptoms!!)