Thursday, July 17, 2025 – Day 338

Thursday, July 17, 2025

Good morning, blog readers.

I want to say thank you for being part of this ALS journey with us. As you’ve seen through my posts over these many months, it’s not an easy road. But your presence, encouragement, and support…along with the kind words about my writing…continues to humble me.

Honestly, I thought by now I might’ve lulled you into complete boredom. I figured at some point you’d grow weary of these morning diatribes. But you haven’t. You’re still here. Thank you for sticking with us…for the hugs, the love, the friendship, and the financial support. It means more than you know.

Yesterday, the kids passed the $30,000 mark on the ALS United website for their upcoming participation in the Chicago Marathon. I’m stunned by your generosity—and the race is still 86 days away!

If you’d like to donate, you can find the link in the top right corner of the blog. Look for the little hamburger icon (☰). Clicking that will reveal a hidden menu and right at the top you’ll see the fundraising link. From there, you’ll find individual links for each of the kids. Donate to one, donate to all—it’s entirely up to you. Thank you for helping fund the important work ALS United is doing to support people living with this “shitty disease.”

Last night, we got together with some of my high school friends. They’ve been incredible since learning about my diagnosis last fall…showing up for us, putting dates on the calendar, and staying engaged in our life.

Their friendship is one of those unexpected blessings that makes this hard road feel a little less lonely. I’m so grateful for them and so many of you who are doing the same for us. One big happy family. And Cathy took responsibility for grabbing photos. Cindy and I can’t be trusted with that job!

And for the record…they still won’t let me pay for my share of the dinner tab. I’m going to have to work on that behind the scenes. Thank you again for last night’s treat.

Later today, we’re being interviewed by the ALS United chapter of New York. A family member is traveling cross-country in honor of his mom, conducting interviews with people affected by ALS. The project is called Limitless Lisa – Cross-Country ALS Awareness Journey, and it aims to tell the story of ALS through different voices and experiences. I’m honored to be included. If you’d like to learn more, here’s the link:

👉 ll-cross-country-als-journey.lovable.app

I’m really looking forward to it… though I do worry a bit about getting too emotional and losing what little voice I have left. Fortunately, Cindy will be right beside me, ready to pick me up if I stumble.

I’ll give you a recap tomorrow.

Have a great Thursday. Love you guys! ❤️