Sunday, August 3, 2025 – Day 355

Sunday, August 3, 2025

Good morning everyone!

We’re home from vacation. I hated to leave—especially knowing a few of my cousins (on the Irish side) are heading up to the lake on Tuesday. But we had other commitments already in place, and I have clinic on Thursday, so we wouldn’t have had much time together. Still… I’m bummed it didn’t work out. Sorry, Peter, Jean, and Anne. 😢

It’s strange—while I did a little walking up north, I didn’t do much else. I was waited on all week, which honestly isn’t too different from home, except I had more hands pitching in. Yet somehow, I came home completely wiped out. So I took a good nap after we got back… while Cindy unpacked the car, put things away, and started laundry. Sorry I couldn’t help, honey.

As ALS progresses, I find myself thinking more and more about what’s being added to Cindy’s plate. This past week really highlighted how much my mobility has slipped…having fallen twice. I’ve been lucky so far…12 falls since the diagnosis and I’ve not been seriously hurt. And every task I can’t manage becomes one more thing Cindy has to take on. I hate that this disease is slowly asking her to give up more and more of her own life. I know it’s nobody’s fault—and there’s no changing it—but man… it sucks.

I’m still hopeful my legs will hold up for the big wedding day…31 days to go. Legs don’t fail me now!

This week is a busy one, starting today. We’ve got something on the calendar almost every day. So I’m going to focus on being grateful—for the friends and family who make the time to show up, share stories, bring laughter, and help keep things feeling “normal.”

Your love is the best medicine we’ve got. When you say “I love you,” it sparks a swirl of emotions in me—and often locks up my voice. So let me just say it now: “I love you too!” And if you look into my eyes, you’ll see what I sometimes fail to say out loud.

Have a great Sunday. Love you guys! ❤️