Monday, October 6, 2025 – Day 419

Monday, October 6, 2025

Good morning, blog readers.

I’ve been making a real effort to increase my formula feedings lately…I’ve just missed too many of them. I simply can’t get enough calories eating by mouth. It’s not that I don’t enjoy food—though it’s no longer the hedonistic pleasure it once was—it’s that I rarely feel hungry. Eating has become something I have to do, not something that is triggered by hunger pains.

I’m hovering around 140 pounds now, which means getting enough calories each day is critical. If I don’t, I’ll just keep losing strength faster.

Yesterday, we had both lunch and dinner plans so we could deliver more Andy’s Army shirts. Lunch was with Jack and Kathy (from CLHS) at Georgio’s. I skipped it so I could get in a formula feeding, since we already had early dinner plans with Bruce (my old IMC-Mosaic colleague) and his wife, Marilyn, at Lindy’s Landing. Two social outings in one day is just too much these days. And honestly, since I don’t eat much when we go out, I didn’t want to miss out on the calories. So, lunch was formula instead of pizza. Not the tastier choice, but probably the smarter one. Sorry, Kathy and Jack—I hated missing you guys.

By the time we left for dinner, my voice was a mess—dry, raspy, and weak. I sounded like a cowboy who’d been wandering the desert for days without water. Then it hit me: I hadn’t had anything to drink by mouth all day. I get plenty of hydration through the PEG feedings, but that doesn’t do much for keeping the vocal cords happy. Staying hydrated, of course, comes with its own… logistical challenges. Let’s just say “more bathroom breaks” and leave it at that.

When we got to Lindy’s, I could barely squeak out a “hi” to Bruce and Marilyn. But at least I could still manage a good, tight hug—that’s one skill ALS hasn’t taken yet. Cindy wheeled me in, we got seated, and I ordered water and a beer as soon as the server appeared. I didn’t care which arrived first. After about 10–15 minutes of sipping, my voice finally started to come back. Whew—Cindy wouldn’t have to carry the entire conversation… just most of it.

We caught up on each other’s lives and, naturally, talked a bit about my ALS. That part always brings a mix of emotions, and it’s tough to get the words out—both physically and emotionally. But as always, the heart of the conversation came back to the incredible support we’ve received from so many people. That’s the constant thread in every chat we have these days.

Bruce and Marilyn mentioned how much they enjoy reading this blog—something I hear often and never take for granted. I’m still flattered that people want to read my inner thoughts, reflections, and daily musings. So let me say once more what I’ve said before: it’s because of all of you—our circle of friends and family—that Cindy and I have been able to flourish this past year. I may have a shitty disease, but we are surrounded by love and kindness every single day. Thank you. 🙏

On a lighter note, I finished Lethal Prey yesterday—meaning I’ve officially completed the entire Lucas Davenport series. Thirty-five books! It’s been a fun challenge, and I’m still curious who’s been sending them. Whoever you are—thank you!

Today’s plan: a trip to the library to see what new adventures I’ve missed these past six months.

Have a great Monday, everyone. Love you guys! ❤️

Today’s photo from Lindy’s Landing

Left to right: Marilyn, Andy, Bruce, and Cindy

I’ve received photos from many of you wearing your Andy’s Army shirts, I will post them…I just don’t want to do them all at once.