Sunday, November 2, 2025 – Day 446

Sunday, November 2, 2025

Good morning, friends and family.

I’ve been bouncing back and forth between the master bedroom and the guest room lately. The master is a bit of a hike to the bathroom, and the guest room route is more reasonably short. In ALS terms, it becomes a tactical mission every trip to the bathroom: slow, careful, deliberate steps…while my bladder counts down like it’s launching a rocket. Two simultaneous goals need to be met, don’t fall and don’t leak.

I’ve been taking a prescription to calm the bladder for a couple of months now, dialing in the dosage, and I actually think working. I’m not getting that frantic “drop everything and sprint” signal the second my bladder hits 30% full. It’s seriously been like that. And I’m not peeing 10+ times a day, which feels like a minor miracle on its own. Fewer trips means fewer opportunities to fall. Last fall was August 16th. 🙂

So of all the pills I take, the ones aimed at symptoms seem to be doing their job. As for the meds to slow ALS progression…who knows? Every ALS patient’s path looks different, and there’s no report card telling me if they’re helping or if my body’s just doing its own thing.

I’ll tell you what I really want: a miracle drug to cure this damn disease. I don’t spend much time hoping for that in the short term, but long-term? I want all the fundraising and research to pay off so future ALS patients have real, tangible hope. They deserve that.

For now, though, I’ll take the win of keeping my bladder in check and saving Cindy from extra laundry. Small victories count. Plug the leaks, celebrate the day.

I’m back in the master bedroom again as of last night— the king bed is much more comfortable, especially with Bear sharing real estate. A double bed with a dog? That’s just a cramped sleepover.

Last night’s time change didn’t mess with me too badly. I woke up at 4:00 a.m. new time (yes, I know, resist the eye roll), and honestly…I feel pretty good this morning. Let’s see if the day cooperates.

Have a great Sunday. Go Bears. Love you guys! ❤️

Today’s photo: