Monday, February 23, 2026 – Day 549

Monday, February 23, 2026

Good morning, everyone.

Hospice admissions came to the house yesterday and spent a couple of hours walking us through their services. I was genuinely impressed by everything they offer to make me comfortable and to make life a little easier.

Truthfully, it isn’t all that different from what we’ve been doing since the day I was diagnosed with ALS. From the beginning, this has been about managing symptoms, adapting the house, lining up equipment, and finding tools to keep me as independent and safe as possible. There’s no cure for this shitty disease, so in some sense I’ve been on a form of hospice from day one.

Now it’s just official.

The biggest shift is that hospice takes over the coordination. Instead of juggling multiple vendors for supplies and breathing equipment, they handle it all. Cindy has spent countless hours on the phone, managing staff spreadsheets over the past year and a half making sure we never ran out of consumables or ventilator supplies.

Hospice simplifies that. One team. One call. One plan.

What’s not to like about that?

Except, of course, what the word hospice represents.

But here’s the part that matters: I’m still here. I’m still thinking, feeling, laughing(less), loving, and writing. Comfort is the goal now. That feels like clarity, not surrender.

Have a good wonderful Monday. Love you guys!❤️

Random photo from Alex & Nicole’s wedding.