Wednesday, July 23, 2025 – Day 344

Good morning! It’s another scorcher today, so I’ll be staying indoors again. Honestly, this summer might break my all-time record for indoor living—at least since 1988. That was the infamous summer of 47 days over 90° and a sweltering seven days in the triple digits. Memorable for more than just the weather… Nicole was in the oven (literally), and Kim was on bed rest, stuck inside while I, the proud expectant father, probably found a way to complain about having to go to work and face the heat everyday in an air conditioned environment.

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Tuesday, July 22, 2025 – Day 343

Good morning!! It’s getting busy around here—almost like we’re moving to a new home. We’re heading up to Wisconsin for a family vacation, and depending on how things go, we may be gone for nearly two weeks. Over the past few months, so much medical equipment has been delivered to the house—and the truth is, I use all of it. So when it comes time to pack the car, it’s going to be a tight fit.

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Monday, July 21, 2025 – Day 342

Good morning, everybody—hope you had a great weekend. I’ve talked about some of my high school friends in the past, but today I want to mention someone I met way back in my sophomore year—Carrie. We met in geometry class, which I hated. I could never quite wrap my head around theorems. Those early years of high school were awkward for me. I was still trying to find my place and figure out who I was.

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Sunday, July 20, 2025 – Day 341

Good morning! Welcome to Sunday—and for all you golf fans out there, it’s the final round of the British Open. For those who don’t care about golf… don’t worry, it’ll be over by early afternoon. Meanwhile, back on the home front, my digestive system has staged a full-scale rebellion… again. We’re talking delays, roadblocks, and—let’s be honest—total gridlock. I had high hopes that with enough fiber and water, and no other “encouragement,” I could keep things moving naturally.

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Saturday, July 19, 2025 – Day 340

Good morning. It’s the weekend. I’m always thinking about those of you who are still working and the joy you get from sleeping in or doing something fun after a week of the grind. I had my annual physical yesterday—now officially called a “wellness check” since I joined Medicare. Honestly, it’s a strange exam compared to the physicals I’ve had in the past. Once I was in the exam room and confirmed who I was with name and date of birth, the tech started asking a long list of questions I’m not used to.

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Friday, July 18, 2025 – Day 339

Good morning—it’s Friday! Hope you have some exciting plans for the weekend. Yesterday, we had the privilege of meeting a young man named Dean, who’s traveling across the U.S. gathering perspectives from individuals diagnosed with ALS. Dean is 19 years old, freshly graduated from high school, and using his summer break—before heading off to college—to pursue this project. I thought back to where I was at 19, and I can tell you with absolute certainty: I wasn’t anywhere near mature enough to take on something this meaningful.

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Thursday, July 17, 2025 – Day 338

Good morning, blog readers. I want to say thank you for being part of this ALS journey with us. As you’ve seen through my posts over these many months, it’s not an easy road. But your presence, encouragement, and support…along with the kind words about my writing…continues to humble me. Honestly, I thought by now I might’ve lulled you into complete boredom. I figured at some point you’d grow weary of these morning diatribes.

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Wednesday, July 16, 2025 – Day 337

Good morning. Yesterday, I mentioned to Cindy that I find myself doing a kind of improvised country line dance when I walk—just without the music, rhythm, or control. It’s a lot of steps, a lot of corrections, and absolutely no two routines are the same. Every trip across the room is a new piece of choreography. The footwork is awkward, the balance is questionable, and the tempo is whatever gravity decides.

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Tuesday, July 15, 2025 – Day 336

Good morning! ☀️ Thanks to everyone who chimed in with suggestions on how to transport the new beast of a wheelchair. I was genuinely surprised by how many of you weighed in. The overwhelming consensus? Bite the bullet and get a modified vehicle now—solve the problem once instead of nickel-and-diming it for months, only to end up in the same place anyway. I agree. It’s time to rip off the Band-Aid.

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Monday, July 14, 2025 – Day 335

Good morning! Welcome to a new week! Today’s post is all about finding a practical solution. No emotional, philosophical or social engagement thoughts…just pros and cons dealing with an ALS problem. Before we go there, Happy Birthday to Mike and Beth’s granddaughters, Lainey and Lilly, who turned 8 over the weekend! Hope you had a great party! Yesterday, I reached out to my brother Tim and asked if he could come over and bring down our trailer hitch from storage…packed into the recesses of the garage…the one we normally use to transport extra gear on road trips.

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Sunday, July 13, 2025 – Day 334

Good morning, everyone! It’s Sunday. Two months from today is Alex and Nicole’s wedding—but who’s counting? (Me. I’m counting!) Honestly, I think my body might just hold up until then. I’m still walking… not gracefully, but technically, it counts. And I’m really happy with where things stand right now. A year ago, I wasn’t sure I’d even be walking at this point. So yeah, this feels like a win. It was about two months ago that a technician came out to take measurements for my new power wheelchair—the fancy-dancy one with all the bells and whistles designed to keep me mobile and functional as ALS progresses.

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Saturday, July 12, 2025 – Day 333

Good morning!🤩 Yesterday morning, I had a tough start early in the day. I was out on the patio early, trying to set up the Big Green Egg to cook some bacon. The coals were fired up, and I was working through the usual steps. I reached for the ceramic deflector stone—but I couldn’t lift it. My arms and hands just wouldn’t cooperate. As I stood there, struggling with something I used to do without thinking, our neighbor Laurie walked over.

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Friday, July 11, 2025 – Day 332

Good morning… it’s Friday! Wow! I can’t believe I slept in until 5:30 a.m.! I know that sounds weird, but that’s late for me—and it throws my whole morning off. Even stranger is the mini panic attack it triggers, like I’m going to be late for work or miss an appointment. I’ve taken this blog seriously enough that I want it published by 7:00 a.m. CST so it’s timely each day.

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Thursday, July 10, 2025 – Day 331

Good morning, friends, family, and fans! It’s Throwback Thursday…guess I better dig up a photo where I still had biceps and functioning vocal cords since we didn’t take a photo yesterday…a miss! Yesterday, we met up with Lis and Steve for lunch at Seasons 52 in Schaumburg. They’re heading off to London and then cruising through the Norwegian Fjords. What a great trip! Lunch was excellent, though the noise level rivaled a middle school cafeteria on parent day.

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Wednesday, July 9, 2025 – Day 330

Good morning and hello to Wednesday. I finally have my little—and I mean little—audio studio set up to record my voice (or anything else I feel like recording) from here on out. It’s tucked into the corner of the guest bedroom, but the key is: it’s ready. All I have to do now is plant my butt in the chair and get it done. With some practice, I’m hopeful I can capture a voice recording that still sounds like me.

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Tuesday, July 8, 2025 – Day 329

Good morning. It’s Tuesday. It’s been a quiet few days at home…reading and working on a jigsaw puzzle as a distraction from watching the heartbreaking news out of Texas. The loss of so many lives has been shocking. The images of destruction are nearly impossible to process. And the tragedy at Camp Mystic—the loss of campers and counselors who never made it home…feels especially crushing. It weighs on me in a way I didn’t expect.

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Monday, July 7, 2025 – Day 328

Good morning, and welcome to a new week of life. First, sending love and condolences to my cousin Renee and her husband Doug, who lost their 16-year-old dog, Posey, over the weekend. I’m so sorry. 😢 ALS update. WEIGHT… I started my new diet a couple of weeks ago…though realistically, it’s only been a week since I finally started having success with my formula feedings. That first week was rough.

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Sunday, July 6, 2025 – Day 327

Good morning, rise and shine! It’s the last day of the 4th of July weekend. We’re hoping to catch the parade today—if the rain doesn’t interfere. Outrunning raindrops in a wheelchair is tricky business, but hey, it’s only water. Not the worst thing that could happen. The last couple of weeks have been hot… even by my standards. My internal heating and cooling system is completely out of whack. I used to carry a pullover everywhere…especially if we were going to a restaurant where the A/C was cranked.

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Saturday, July 5, 2025 – Day 326

Good morning! It’s the morning after a full night of fireworks 🧨… mostly what I’d call flash-bangs. No oohs and aahs…just loud explosions deep into the night. I love a good fireworks show, but I don’t get the thrill of making loud noises on repeat while the rest of the neighborhood is trying to sleep. My fantasy payback? Track down where these guys live and launch my own barrage of noisemakers.

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Friday, July 4, 2025 – Day 325

Good morning.
Happy 4th of July! 🎆🎇🧨 The 4th has always been one of my favorite holidays. The weather is usually perfect, and if you can stay up late enough, the firework shows are well worth the wait…with plenty of chances to “ooh” and “ahh” along the way. We probably would’ve gone up to Fence Lake this weekend if it weren’t for the setbacks from the feeding tube surgery. There’s just something about sitting on the pier, watching some of the best firework displays money can buy.

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